Gavin had a clear MRI on January 12th. Thank you for remembering him in your prayers.

Friday, November 18, 2011

Gavin Requests The Hair Prayer

Gavin turned 7 last week.  I felt great reverance right before he blew out his candles, knowing that we didn't know if we'd ever see his 7th birthday or not.  I feel so blessed to have him here with us. 

He's made some great gains this fall in therapy and in school.  He recently finished his first baseball season.  And to top it off, he lost his first tooth.  As I posted on Facebook when we realized it was loose, normal milestones make me giddy.  While I still have a lot of the same frustrations that come with most parents, I am pretty sure my appreciation for normal stuff is higher than average.  ;) 

And yet, the ramifications of what Gavin's been through still show through in various ways.  For a little while now Gavin has been bringing up his prayer request for more hair before our bedtime prayer.  He didn't make a big deal of it, just said he wanted more hair.  Tonight, however, the conversation went a bit further.  Instead of just saying he wanted more hair, he expressed how badly he wants to have more hair.  As he twirled his fingers through my long hair, he said he wants "lots of hair," like mine.  "Big hair."  (Not sure what that means, but I'm pretty sure it's way more than he currently has.)  He wants "so much more hair - like everybody else in the whole, wide world."  It clearly bothers him now that he doesn't have anywhere near a full head of hair. 

As my heart was breaking for him and I was fighting off the tears, we talked again about how the radiation that helped get rid of his cancer made it difficult for his hair to grow back.  I told him that I think he's absolutely handsome with a little or a lot of hair.  He didn't agree so much.  So I quit trying to rationalize it all for him.  I went back to square one and said that I would pray for a lot more hair with him.  And that appeared to be enough for him for that moment. 

I knew this day would come.  I knew this conversation would break my heart.  And I knew I wouldn't be able to make it all better when he told me how much it bothered him.  And yet it still hit me pretty hard. 

Gavin's oncologist made it pretty clear to us that what hair a child gets within 6 months of ending treatment is generally all they are going to get.  Some kids that get whole brain radiation don't get all of their hair back.  Some do.  Gavin's been off treatment now for nearly 2 and 1/2 years.  And yet his hair looks like he's recently ended chemotherapy. 

Maybe it's not in God's plan for Gavin to have a full head of hair.  Have I written about that before or just talked about it to other people?  I can't remember and honestly don't feel up to the research for it tonight.  But, I've often wondered if God didn't want Gavin's hair to come all the way back so that he would stand out a bit more.  People would be more likely to ask what happened.  We'd be more likely to share his story and the way that God worked through Gavin's cancer.  And as great as that sounds, I'm not going to lie.  I want my son to have hair because I want him to feel okay about himself.  Don't we all?  Even if it is part of God's plan for Gavin, I just hate knowing this is bothering Gavin.  It hurts me to see him sad about his differences.

I've talked about the hair prayer on here before.  But, it's been awhile.  And honestly, I've not been praying for more hair as fervently as I should.  Many people probably think it's silly to pray about hair, given what Gavin's been through and the scientific odds not in our favor for new growth.  However, I disagree.  God made those hair follicles.  He can recreate them as well.  And if he chose to do so, long after science could say it grew back on its own, wouldn't that give God glory as well?  I think so.  Because God knows our hearts and wants us to bring our concerns to Him. 

For now, I will not have the "this is all the hair you're going to get" conversation with Gavin.  Instead, I will lead by faith, telling him that we know it's possible for God to grow more hair if He wants Gavin to have more hair.  We'll ask God for more hair.  And lots of it.   

We'll gladly take your prayers as well. 

Gavin's Hair Prayer Club. 

I'll keep you posted. 

Much love,

5 comments:

Lea said...

I can certainly understand why that would be an important prayer for him and I know God understands that also. I will add that to my prayer list.

A visiting pastor at our church recently talked about two kinds of prayer.
Red Sea Prayers are those prayers where God changes something externally and we get to SEE and/or experience God's answers, like Moses did at the Red Sea and like you have with Gavin's healing.
Gethsemane Prayers are those prayers where God changes something internally. We don't get to see or experience that change external to us but God makes the changes that we need internal (our thoughts, emotions, coping ability, etc.), which is what He did for Jesus in the Garden of Gethsemane. Jesus prayed three times for God to let this cup pass by Him but not His will but God's will be done.

I probably didn't explain it well but it really hit home for my husband and I and seemed like a good explanation of what happens when our prayers are not answered exactly as we had hoped. This pastor's wife has been battling cancer for a while now and they have recently learned and accepted that they are at the end of that battle and she is going to go home to be with God soon.

My heart goes out to you. I know that must have been a hard conversation. I have a hard one coming at some point, when my two sons reach the age where they understand the true meaning of adoption and have to struggle with the understanding of why their biological parents gave them up for adoption. I'm not looking forward to the hurt they will feel when they understand what it all means. But I pray God will help them understand it and heal their hurt.

I will continue to keep Gavin in my prayers and will definitely add more hair to the list.

Anonymous said...

count me in as a member of the garse. vin hair prayer club!!! I agree with all you said and what you plan to say to Gavin. trust your heart because it seems yto be a hugh love filled heart and always leads you in good directions. I wish i could give him my hair but then the would have brown hair with streaks if gray and that just might make him feel worse :0) remember the morning Gavin got up to find the painful very nasty lip/mouth sore completely healed. we know how/why that happened and I believe the hair will happen if and when He wants to make it happen. we love you smiths so very much. You abzolutely strengthen my faith . Hand in there Gavin nd Garret's mommie, i know this hurts you more than ir hurts your little man. got you and yours in our prayers. love mike and beth coleman

Anonymous said...

Well, of course we'll pray for hair!!!

Happy Thanksgiving,
The Swanson Family

Kathy said...

Have you checked our hair club? That's what Steven does, and it's free for Gavin:
http://www.hairclub.com/hc-for-kids.php

Kathy said...

Have you checked our hair club? That's what Steven does, and it's free for Gavin:
http://www.hairclub.com/hc-for-kids.php

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